Exhaustion seeping from my pores….

Don’t say it’s not possible, it is! Exhaustion absolutely dripping from my pores after a very long and anxious day at the hospital. Went for my appointment this morning and after reporting all the symptoms I have been experiencing since last time, alarm bells seemed to be going off rather loudly! It seems that my itchy rash is infected and there was some worry, after my extreme breathlessness (following the last chemo) that I may have a clot on my lungs….This was after discussing the many eye issues and finding that they really have to stay “on hold” until chemo is over.

After lots of moving around a variety of hospital waiting rooms, I had a chest scan at about 4pm and then had to return to oncology to wait for and discuss the results. The good news is that there is no clot and that the chemo is working very well. The bad news is that then I could either opt for (in non-medical speak!):

(i) a lower dose of chemo from round 4 – so less stuff that is working but may make life more bearable.                                                                                                                                                                       (ii) Have the reduced dose but add in the missing volume to another couple of rounds.  A definite no!                                                                                                                                                                         (iii) Or stick with the programme and see if the symptoms stay the same next time or if I can tolerate them.

I opted for the third – let’s continue to try to diminish it the quickest/most effective way we can!

11:00 – 5:00 is too long a day in the hospital for me! So now I am going to go and lie down to see if I can energise for the undoubtedly nail biting England v Poland  football this evening. Will “we” win and qualify at this earliest stage…Hope so!

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8 thoughts on “Exhaustion seeping from my pores….

  1. re previous blog.”Which came first sardines or Sardinia?Sorry about all the new symptoms.These things are sent to try us.I did Congrats on chhoosinghave a clot or I am a clot and I had to give myself heparin injections for months.At least there was plenty room on my tummy to stick the needle s in.have pity on the skinny size10s Congrats on choosing the 3rd option,brave as ever Gentle hugsxxx

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  2. I think that sounds like a too long day at he hospital, even for a well person!
    Good to hear things weren’t as bad as they might have been, and that the therapy is doing what it is intended to do. I read about a woman undergoing gruelling chemo therapy once who managed to persuade herself that the chemo therapy was like light particles bringing health and energy to all the sick cells. Not sure if this will work for you, but she came out of it well, eventually.
    Thinking of you, – would love to see you soon 🙂

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  3. I hope you coated yourself with Jo Malone for your visit today … when you are better, think you could join the ORH board as a very experienced mystery shopper and let them have your verdict on (what sounds like) treatment in EVERY department. I agree with third choice too! Exhaustion is also seeping from my pores watching Poland attack the goal … xx

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  4. Glad no pulmonary embolus. Difficult decision to make re chemo. Good to hear that the poison is doing its job.
    Result tonight! The boys done us proud. I look forward to watching with you next year.
    Margaret

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  5. Sorry to hear you had such a rotten day at the hospital but glad that the chemo is doing its work.

    I hope you enjoyed the match as much as I did. Glued to the seat .although there was a lot of shouting and arm waving going on. Great result!

    Sandra
    xx

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  6. Hi Wendy. Chemo is strange like that. Some sessions you sail through, others leave you feeling like rubbish. My bad ones were the 2nd and 5th, but they affect everyone differently. I went for my results on Tuesday – good and bad news also. The bad news is I have “multiple sites” in my spine and pelvis. The good news is that the drugs are working and my tumour markers have come down from 300 to 130 (no, I don’t know what that means either). Anyway, I’m just pressing ahead and making plans for the future. I’d hate to end up healthy with nothing to do!
    Keep going, my love. It’s much better than the alternative! Ronnie

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