I have been to Crete and back since I last blogged and in the process have discovered the possible cause of the Greek economic problems. Everybody (certainly in Crete) is so incredibly open, warm and generous! I have stayed with and met the most amazing people, dined on the most fabulous fresh food, drunk delicious Cretan wine (and raki) as well as soaking up the very hot sunshine and swimming in the Aegean. Yes…I swam in my bizarre and unnecessarily fluorescent mastectomy swimsuit…and survive to tell the tale.
Had a fascinating day in Spinalonga – the island where Greek lepers were sent 1903-1957. It felt somehow incumbent upon me to visit “my people”, even if they were in the cemetery. Since my foul skin rash and constant itchiness of the past year I have been conscious of a deep affinity to all lepers. Perhaps they have been conscious of me also as since the visit/pilgrimage the rash has lessened day by day. (Of course it could be that I am for the first time, more than 3 weeks from my pertuzumab treatment which is thought to be the cause of the “leprosy”)
But now I am back to face the music this week. It has been very liberating to have a week where I haven’t had to get undressed for doctors, have multiple blood tests or go in a machine of some sort. BUT….my on-going treatment starts at home on Monday. Apparently because the drug is being given in a community rather than hospital setting, it has to be infused over two hours rather than the usual half an hour. By the time the cannula is put in and the flush at either end of the treatment is given, this will mean a good half day. Wonder if I have to talk to the nurse all this time or whether she will have other business she can attend to…I had rather imagined lounging around in the sitting room with cat in lap whilst this all took place rather than making conversation…Hmmm…
Tuesday is my multiple hospital appointments. It looks like they have been re-arranged so that I can manage them all in the same day, I hope that is the case. There is a lot to discuss this time which always makes me nervous. Whether I go back to the surgeons again will also depend on this appointment. Then GP appointment later in the week.
So back on the hamster wheel and back to grey skies but if I close my eyes there is still Crete.