Blowing hot and cold

I have been to Crete and back since I last blogged and in the process have discovered the possible cause of the Greek economic problems. Everybody (certainly in Crete) is so incredibly open, warm and generous! I have stayed with and met the most amazing people, dined on the most fabulous fresh food, drunk delicious Cretan wine (and raki) as well as soaking up the very hot sunshine and swimming in the Aegean. Yes…I swam in my bizarre and unnecessarily fluorescent mastectomy swimsuit…and survive to tell the tale.

Had a fascinating day in Spinalonga – the island where Greek lepers were sent 1903-1957. It felt somehow incumbent upon me to visit “my people”, even if they were in the cemetery. Since my foul skin rash and constant itchiness of the past year I have been conscious of a deep affinity to all lepers. Perhaps they have been conscious of me also as since the visit/pilgrimage the rash has lessened day by day. (Of course it could be that I am for the first time, more than 3 weeks from my pertuzumab treatment which is thought to be the cause of the “leprosy”)

But now I am back to face the music this week. It has been very liberating to have a week where I haven’t had to get undressed for doctors, have multiple blood tests or go in a machine of some sort. BUT….my on-going treatment starts at home on Monday. Apparently because the drug is being given in a community rather than hospital setting, it has to be infused over two hours rather than the usual half an hour. By the time the cannula is put in and the flush at either end of the treatment is given, this will mean a good half day. Wonder if I have to talk to the nurse all this time or whether she will have other business she can attend to…I had rather imagined lounging around in the sitting room with cat in lap whilst this all took place rather than making conversation…Hmmm…

Tuesday is my multiple hospital appointments. It looks like they have been re-arranged so that I can manage them all in the same day, I hope that is the case. There is a lot to discuss this time which always makes me nervous. Whether I go back to the surgeons again will also depend on this appointment. Then GP appointment later in the week.

So back on the hamster wheel and back to grey skies but if I close my eyes there is still Crete.



8 thoughts on “Blowing hot and cold

  1. so pleased you were able to escape for a while. I’m on my week off chemo so feel fab but dreading Thursday and going back on it. Tell me about your treatment. Is it chemo as well? I’m just praying my body starts to get used to it.


  2. I am so glad that you had a lovely holiday…. Although I missed your blog! Love from Pamela xx good luck with your appointments and treatment xx


  3. Hi Wendy – so glad you managed to get that holiday and that you have managed to get some rest and relaxation. We have just returned from Portugal and recharged the batteries for the next lot of treatment… You don’t get away from the reality of the situation but getting away from endless medical appointments and making the most of sun, sea and lovely food ….even for a short period of time helps .
    We have already started looking for the next trip – to give us something else to focus on. Wishing you all the very best x


    1. hi wendy delighted you managed to get away from all the hospital to-ing and fro -ing and to recharge your batteries.missed your blog wondering what had happenrd to you or my expertise on my lap top .good luck for next week and the Alice


  4. Lucky girl to be able to get away

    Sounds to me like this is something you deserve on a regular basis (like once a month?)

    Bev Jacobson
    Library Co-ordinator

    [Campion Education]
    Campion Education (Aust) Pty Ltd
    7 Oxleigh Drive, Malaga WA 6090

    t 08 6240 2712
    f 08 6240 2799
    m 0434 954 554
    w / / /

    abn 33 074 318 602


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