Unsure how well known this hasthtag is. Brought to life by the wonderful Dr Kate Granger – a doctor in Yorkshire turned patient by cancer. Read her book The Other Side.
I have not been silent by choice. After an infusion of acute stress last week my reaction was a near fatal collapse – blue lighted to hospital, 5 days in intensive care, when my family were gathered in the small hours to be told that I probably wouldn’t make it through the night. After being ventilated, intubated, gastro fed, catheterised, lumbar punctured, scanned, x-rayed, monitored to the nth degree and many bits too gory and hallucinatory to mention I remain undiagnosed but fit to communicate, even though fit for very little else…although I have at last been able to have a shower.
It is so comforting to know that even as paramedics cut off my clothes…my cat remained asleep next to me…Not so, my son…my rock.
So, my plans for doing the “living to death” have taken a dramatic nosedive or diversion at the very least until neurology/cardiology find a diagnosis that is compatible with travel…some hope eh…? At present a hairwash feels like living the life. The options currently range from stroke to living with type 1 diabetes and other delights. Me..I expect no definitive diagnosis.
I have lots to say about the ups and downs of this continuing experience. How dare anybody complain about our NHS and the dedication of all its staff. How dare they challenge the rightful requests of our junior doctors. I can only think they are people that sit behind desks and don’t ever see life at the true coalface.
When I did not show up for my oncology appointment because of being hospitalised in a different hospital, my wonderful consultant looked me up on the hospital system, saw what had happened and phoned me on my ward to talk with me.